Comments for IDF Policy Matters http://idfpolicymatters.org The Immune Deficiency Foundation's Blog, Giving Political Context and Explanation of IDF Advocacy Issues and Activities Thu, 12 Jan 2012 19:28:54 +0000 hourly 1 http://wordpress.org/?v=3.1 Comment on ‘Tis the Season by IDF_Emily http://idfpolicymatters.org/2011/12/13/hunting-season/comment-page-1/#comment-75 IDF_Emily Thu, 12 Jan 2012 19:28:54 +0000 http://idfpolicymatters.org/?p=186#comment-75 Lisa, If you would like to share your story about how a switch in Ig therapy resulted in an adverse reaction, please contact IDF through the CONTACT button at the top of this page. Pelase include your address, phone number, and email. Thank you for your support! My best, Emily Hovermale Public Policy Manager Immune Deficiency Foundation Lisa,

If you would like to share your story about how a switch in Ig therapy resulted in an adverse reaction, please contact IDF through the CONTACT button at the top of this page. Pelase include your address, phone number, and email.

Thank you for your support!
My best,
Emily Hovermale
Public Policy Manager
Immune Deficiency Foundation

]]> Comment on ‘Tis the Season by Lisa Mathena http://idfpolicymatters.org/2011/12/13/hunting-season/comment-page-1/#comment-74 Lisa Mathena Wed, 28 Dec 2011 23:55:03 +0000 http://idfpolicymatters.org/?p=186#comment-74 That's wrong and inhumane!! I personally can only have one brand of IVIG. Anything else gives me SEVERE migraines for days. Along w nausea and rigors. Not every person and case are the. Some side effects can be life threatening. That’s wrong and inhumane!! I personally can only have one brand of IVIG. Anything else gives me SEVERE migraines for days. Along w nausea and rigors. Not every person and case are the. Some side effects can be life threatening.

]]> Comment on ‘Tis the Season by Jennifer Kling http://idfpolicymatters.org/2011/12/13/hunting-season/comment-page-1/#comment-72 Jennifer Kling Sat, 17 Dec 2011 01:41:00 +0000 http://idfpolicymatters.org/?p=186#comment-72 It makes me sick to read about this possibility. Our son is only six and he is thriving with sub Q. Every Tuesday, we get out his bear and a family game or video and his Sub Q treatment is finished in a little over an hour. Our pediatrician has never seen him this healthy in all the years that she has known him. To imagine that a health insurance company would force him to use IVIG is crazy! We save the health insurance companies so much money by doing the Sub Q at home without home care nurses. If we had to do IVIG, it would cost so much more at an infusion center or at Children's Hospital. It makes me sick to read about this possibility. Our son is only six and he is thriving with sub Q. Every Tuesday, we get out his bear and a family game or video and his Sub Q treatment is finished in a little over an hour. Our pediatrician has never seen him this healthy in all the years that she has known him. To imagine that a health insurance company would force him to use IVIG is crazy! We save the health insurance companies so much money by doing the Sub Q at home without home care nurses. If we had to do IVIG, it would cost so much more at an infusion center or at Children’s Hospital.

]]> Comment on ‘Tis the Season by IDF Policy Matters blog | Insurers are Not Doctors http://idfpolicymatters.org/2011/12/13/hunting-season/comment-page-1/#comment-70 IDF Policy Matters blog | Insurers are Not Doctors Tue, 13 Dec 2011 17:05:17 +0000 http://idfpolicymatters.org/?p=186#comment-70 [...] While hunters go after various game this time of year, it seems that health insurance companies go after vulnerable patients – especially those with rare and chronic diseases.  This season patients with primary immunodeficiency diseases who are members of Coventry Health Care and its subsidiaries in Pennsylvania, Missouri and Illinois seem to be the primary target.  Read More at http://idfpolicymatters.org/ [...] [...] While hunters go after various game this time of year, it seems that health insurance companies go after vulnerable patients – especially those with rare and chronic diseases.  This season patients with primary immunodeficiency diseases who are members of Coventry Health Care and its subsidiaries in Pennsylvania, Missouri and Illinois seem to be the primary target.  Read More at http://idfpolicymatters.org/ [...]

]]> Comment on We’re back! IDF 2011 Advocacy day–May 26! by IDF_Emily http://idfpolicymatters.org/2011/05/19/we%e2%80%99re-back-idf-2011-advocacy-day%e2%80%93may-26/comment-page-1/#comment-68 IDF_Emily Fri, 27 May 2011 16:06:01 +0000 http://idfpolicymatters.org/?p=153#comment-68 What a fabulous day all around! All told, we heard from about 7 Members of Congress definitely that they would support the legislation! We expect to hear from quite a few more in the next week or so! What a fabulous day all around! All told, we heard from about 7 Members of Congress definitely that they would support the legislation! We expect to hear from quite a few more in the next week or so!

]]> Comment on We’re back! IDF 2011 Advocacy day–May 26! by Elizabeth Ferguson http://idfpolicymatters.org/2011/05/19/we%e2%80%99re-back-idf-2011-advocacy-day%e2%80%93may-26/comment-page-1/#comment-67 Elizabeth Ferguson Thu, 26 May 2011 19:17:06 +0000 http://idfpolicymatters.org/?p=153#comment-67 Congresswoman Tsongas pledged to co-sponsor HR 1845!! Way to go MA!! Congresswoman Tsongas pledged to co-sponsor HR 1845!! Way to go MA!!

]]> Comment on We’re back! IDF 2011 Advocacy day–May 26! by Colin Seal http://idfpolicymatters.org/2011/05/19/we%e2%80%99re-back-idf-2011-advocacy-day%e2%80%93may-26/comment-page-1/#comment-66 Colin Seal Thu, 26 May 2011 17:28:10 +0000 http://idfpolicymatters.org/?p=153#comment-66 Rep. McGovern is on board! Way to go. There are still a lot of meetings to go! Rep. McGovern is on board! Way to go. There are still a lot of meetings to go!

]]> Comment on We’re back! IDF 2011 Advocacy day–May 26! by mya medellin http://idfpolicymatters.org/2011/05/19/we%e2%80%99re-back-idf-2011-advocacy-day%e2%80%93may-26/comment-page-1/#comment-65 mya medellin Thu, 26 May 2011 16:57:08 +0000 http://idfpolicymatters.org/?p=153#comment-65 i am here supporting my brother. Having a awesome time and can't wait for the rest of the meetings!! i am here supporting my brother. Having a awesome time and can’t wait for the rest of the meetings!!

]]> Comment on We’re back! IDF 2011 Advocacy day–May 26! by avery medellin http://idfpolicymatters.org/2011/05/19/we%e2%80%99re-back-idf-2011-advocacy-day%e2%80%93may-26/comment-page-1/#comment-64 avery medellin Thu, 26 May 2011 16:52:29 +0000 http://idfpolicymatters.org/?p=153#comment-64 The Texas group is having a great time on Capital Hill. The first 2 meetings have gone great!!! The Texas group is having a great time on Capital Hill. The first 2 meetings have gone great!!!

]]> Comment on We’re back! IDF 2011 Advocacy day–May 26! by Melissa Berkowitz http://idfpolicymatters.org/2011/05/19/we%e2%80%99re-back-idf-2011-advocacy-day%e2%80%93may-26/comment-page-1/#comment-63 Melissa Berkowitz Thu, 26 May 2011 16:43:05 +0000 http://idfpolicymatters.org/?p=153#comment-63 Met Amy Klobuchar this morning, and had a great meeting with one of her staffers! So far so good! Met Amy Klobuchar this morning, and had a great meeting with one of her staffers! So far so good!

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